Working to Provide a Better Quality of Life for the ALS Community
We have raised and given over $400,000, and helped numerous families over the past 7 years. Some of the home renovation projects we have provided financial assistance for include ramps, stair lifts, bathroom renovations and bath tub sliders. We have also provided funds for commodes, Hoyer lifts, special leg braces, bio-bidet, BiPap machines, communication equipment, Powerlift chairs, van rentals for special outings, neck braces, and prescription drugs.
Some Stories of People Helped
Tom: When Tom had a feeding tube put in, he was unfortunately unable to tolerate the typical tube feeding product. An alternative product called Compleat worked well for him, but Medicare would not cover the cost of the Compleat. The ALS Foundation for Life provided the funds to cover the cost of the Compleat.
Matt: Matt was still ambulatory, but had difficulty supporting his neck and arms, especially when sitting. The ALS Foundation for Life provided the funds for a Humanscale Freedom Chair, which was recommended by his physical therapist at MGH.
John: John is a 60 year old man who is able to sue a walker inside the house, but a wheelchair to go outdoors. The ALS Foundation for Life provided the funds for a ramp to be installed at his house.
Catherine: Catherine is in her 50’s and lives in her own home. She had been using a makeshift ramp that friends installed for her. The ALS Foundation for Life provided the funds to have a permanent ramp installed.
Laura: Laura loves to go on outings with her boyfriend, despite her limitations. The ALS Foundation for Life provided the funds to cover repairs needed on her wheelchair van.
Ellen: An ALS patient in western MA, Ellen required a Hoyer Lift and commode sling so that her caretaker could move her safely. The ALS Foundation for Life provided a grant to cover the cost of a Hoyer Lift and commode sling for Ellen.
Sara:An ALS patient in her 40's, Sara was no longer able to get into the bath tub. The ALS Foundation for Life provided the funds to have her fiberglass tub cut and a sliding door installed. This adaptation allows Sara to continue to bathe in her bath tub.
John: A single male patient, John moved into a one-level condo so he could get around his home in his wheelchair. However, he was not able to leave the condo because there were stairs at both the front and back of the building. The ALS Foundation for Life provided the funds to have a ramp installed so John could go out instead of being confined to his condo.